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Psoriasis, “visible and invisible,” at the beginning of the campaign revealing the psychological importance of the disease



About 2.5 million Italians suffer from it

Many scientific studies have now shown that psoriasis is a chronic, debilitating disease, often prone to relapse, affecting a person’s quality of life, as it is characterized by a clinical symptomatology (crusts, redness, flaking, difficulty walking) as it alters perceptions of body image. the affected. “In Italy, about 2.5 million people suffer from it, mostly adults, but with very different symptoms and manifestations depending on the severity – recalls Ketty Peris, professor of dermatology and head of dermatology at the Catholic University, Gemelli University Hospital Foundation From Rome ̵

1; Even recently, a German study presented at the European Congress of the European Dermato-Venereology Society (EADV) has revealed anxiety levels above the norm for three quarters of psoriasis patients. Talking about it with your dermatologist is the first step to solving the problem, to the psychological level and more New drugs today allow you to have clean skin, free from the itchy areas typical of the pathology.The campaign promoted by the drug company Amgen with the Association for the Defense of Psoriatics (ADIPSO), the Association of Italian Hospital Dermatologists ( ADOI) and the Italian Society of Dermatology and Sexually Transmitted Diseases (SIDeMaST) start precisely from the evidence in German research, according to which 77% of people with psoriasis experience anxiety disorders, especially when skin injuries are in an acute stage or exhibit moderately severe form.

Tell us about the experiences that will be a graphic novel

Revealing the psychological consequences and also sharing them with dermatologists means helping patients regain confidence in their relationship with their physician and improving the quality of treatment. With this in mind, until September 30, patients can share their experience of living with the disease on the campaign website www.impattoinvisibile.it. And at the end of the collection, a jury composed of representatives of the patient association, scientific communities and journalists chooses the story that is best for inspiring a story into a graphic novel, a medium with a strong empathic force that emotionally transposes the experience on paper, thanks to it. skilled pencil by Sergio Algozzino, one of the most esteemed Italian illustrators, will be able to help bring out the invisible side of his disease.On the website www.impattoinvisibile.it all resources available to doctors and patients: information on the pathology and its psychological impact, the map of specialist centers, therapeutic opportunities; the section for participating in the competition, the video with testimonies of a patient and her feelings translated into images by Sergio Algozzino. Starting in September, information will be available on the days and times of teleconsulting activities that will involve dermatologists from eight Italian regions (Piedmont, Lombardy, Veneto, Tuscany, Lazio, Campania, Puglia and Calabria).

Many effective treatments available today

“The importance of psychological disorders in psoriasis is poorly analyzed, although the association of anxiety and depression in various forms, especially the moderately severe ones, is confirmed – says Mara Maccarone, chair of ADIPSO -. Psoriasis is associated with chronic stress and changes the patient’s daily routine with a Negative effects on quality of life and worsening of psoriasis itself. Stigmatization, social isolation and loneliness, exacerbated during this period of medical emergency since Covid-19, can exacerbate nervousness and anxiety, which is why it is important for patients to maintain emotional and social links that can help them share their problems with other patients and with the dermatologist and to support the disease and manage the disease.The treatments available today are numerous and can cure the skin and joints manifestations of the disease and achieve excellent control. “They include” topical “products, such as creams and ointments, and phototherapy used for mild forms – explains Ketty Peris, who is also SIDeMaST president. In severe forms, traditional systemic drugs (tablets or subcutaneous injections), such as methotrexate, cyclosporin and retinoids, or new biological drugs may be used. During the Covid-19 epidemic, oral therapies that can be taken at home were more appreciated and easier to manage not so much in terms of side effects, but because they facilitate the patient’s life and do not expose him to frequent hospital access ».

Talk to your dermatologist to choose the right cure

However, many patients are still not sufficiently informed about the various therapeutic options and their effectiveness; they are often discouraged and disillusioned by any treatment. Although it is important to talk to your doctor or dermatologist to get the most appropriate treatment for the individual case, data shows that 10% of patients with psoriasis wait years before turning to a doctor, 45% go to the doctor . of the family, less than one patient of two turns to a specialist. Finally, only a very small proportion of patients remain for their psoriasis by the doctor who visited him for the first time. «An important aspect that should be addressed concerns bureaucracy, which is often an obstacle to an effective doctor-patient relationship – concludes Francesco Cusano, president of ADOI -. Access to specialist centers should also be improved as it is not homogeneous in the national territory. Patients need to be identified and based on these, the ways and services to be provided and the typology. One example, which has been widely discussed in recent weeks, is telemedicine, which may prove useful in health aids such as coronaviruses and in special cases, for example, in well-known and stabilized patients ».

July 10, 2020 (change July 10, 2020 | 1:30 PM)

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